What a Year We’ve had at Skin Care Cymru

Sorry we’ve been a bit quiet on the web lately but as you can see a lot has been going on -

In the Last 12 months………….

  • October 2015 first meeting of Cross Party Group (CPG) on Skin at Welsh Assembly that had been established by us earlier in 2015. Attended by 30 delegates including Assembly Members, health care professionals, pharmaceutical representatives and other charities in the sector.
  • October 2015 fund raising event held in Bridgend.
  • December 2015 completed scoping report, “Prioritising Skin Health in Wales”
  • January 2016 published and distributed scoping report throughout Wales to Area Health Boards, health care professionals and members of the Welsh Assembly and Government.
  • Distributed a total of £1,200 in grants and awards to medical students.
  • Put on a swimming event, “Comfortable in My Skin” at the National Pool in Swansea.
  • Obtained support from pharmaceutical companies to fund a part time administrator who also provides the secretariat to CPG.
  • October 2016 first meeting of CPG of the new Welsh Assembly who were elected in May.
  • Commenced programme to erect “Sun Cream Signs” in 2017 at beaches to highlight the dangers of skin cancer.

THANKS TO ALL OUR FOLLOWERS FOR YOUR CONTINUED SUPPORT!!!!

 

“Comfortable in My Skin” Swim Event a Success!

On Saturday May 7, Skin Care Cymru hosted a private swim event for people with skin conditions and their families at the Wales National Pool in Swansea.  The event which was widely publicised and was open to all, is part of a wider campaign to support people with skin conditions to feel comfortable in their own skin.  Attendees travelled from as far west as Cardigan and from as far east as Cardiff to support the event and feedback was positive with one participant commenting: “We all had a great time swimming as a family. A very rare event.”  Another swimmer, who has psoriasis, said that the event “was probably the best perk she’s ever had of having psoriasis!”.

swim event photo

Julie Peconi of Skin Care Cymru said: “There are many thousands of people in Wales who have to manage their lives with dermatology issues ranging from acne and eczema to skin cancer, plastic surgery and vitiligo.  Many of us take our skin for granted but for those who have to manage skin conditions it can be difficult and distressing for them and their families. Events like the swimming session at Wales National Pool Swansea support people to feel comfortable in their own skin – whatever their condition.”

Jeremy Cole, General Manager at Wales National Pool Swansea, said the pool was proud to be hosting the Comfortable in My Skin event.

He said: “Wales National Pool Swansea is a flagship swimming venue for Swansea and for Wales. We might be best known for being home to elite athletes but we’re extremely proud of our track record in supporting organisations like Skin Care Cymru to encourage people who might not otherwise feel swimming is for them to take the plunge and join in.

“People with skin conditions can sometimes feel excluded from regular activities such as swimming. Partnering-up with Skin Care Cymru for Comfortable in My Skin will hopefully make a real difference.”

To find out more about similar events and campaigns hosted by Skin Care Cymru go to www.skincarecymru.org or follow Skin Care Cymru on twitter @SkincareCymru.

 

 

 

New Link for Scalp Sufferers

Hi Everyone

Have a look at the Dandruff Deconstructed site (linked on our “Useful Links” page) for the latest and best reviewed shampoos for dandruff sufferers – especially useful for our psoriasis followers!

Great info as always from the Dandruff Deconstructed crew!!!

Cross Party Group – Postponed for Tuesday 2nd

Sorry to say that the Cross Party Group meeting scheduled for tomorrow has had to be postponed.

Please accept our deepest apologies but we have had to cancel tomorrow’s CPG on Skin Meeting (February 2, 5:30 -8:00).  This is due to the fact that Assembly Members, including our Chair, AM Nick Ramsey, will be now be in a Plenary session until at least 6:15, with the strong possibility that the Plenary will over run.  

 We are in the process of looking into some more dates for  before Easter and I will get back to you as soon as possible with the rescheduled date.

 

We are delighted to attach the Skin Care Cymru Scoping Study Report called Prioritising Skin Health in Wales.

Follow the link below to read the English version.

Prioritising Skin Health in Wales 2016 eng

Follow the link below to read the Welsh version.

Prioritising Skin Health in Wales 2016 welsh

This report has elicited issues, challenges and good practices in the delivery of health care services to people in Wales living with skin conditions.  It will form the basis of our upcoming CPG on Skin to be held soon.

 

 

 

Dance Update!!!

Now we’ve had time to count it all up I can announce that we made a fabulous £800 from the Dance at the Bridgend Tennis Club last week!

A very big thank you again to Richard Logan for organising it for Skin Care Cymru and his amazing band Tinnitus for entertaining us so well.

Also I must thank everyone who donated raffle prizes and a special thanks to Sarah Griffiths-Little who persuaded her colleagues at work to take part in a Dress Down Day and gave us a lovely £100 cheque.

Oh What A Night!!!

What a brilliant night we all had last Friday at the Bridgend Tennis Club where Richard Logan and his band Tinnitus entertained at our latest fund-raiser.

Nearly 80 guests including many from the dermatology world, patient support groups and many friends of Skin Care Cymru danced and sang the night away. Tinnitus were excellent with their unique line-up of banjo, fiddle, guitar, bass and accordion. Richard on accordion is centre in the picture below.

We raised a good sum, made new friends and had lots of fun!

First meeting of the Cross Party Group on skin

What a fantastic evening for the first meeting of the Cross Party Group on Skin held in Ty Hywel of the Cardiff Assembly.

Nick Ramsay AM chaired the group which brought together some of the leading names in dermatology and plastic surgery, as well as representatives from patient groups and Welsh Government.

The meeting started with introductions from around the room – a veritable “Who’s Who” in dermatology in Wales, followed by a brief presentation of the proceedings from Nick Ramsay. The meeting then continued with presentations from the group.

Firstly, Sarah Wright from Skin Care Cymru and Dr Hayley Hutchings presented State of the Nation – a report on the scoping research in Wales. This research is collecting evidence from all the Health Boards around Wales on dermatology services provided and the experience of patients. This ongoing research will be completed by the end of the month and a full report given then.

Girish Patel, Consultant Dermatologist at Hywel Dda and Honorary Senior Lecturer in the European Cancer Stem Cell Research Institute, reported on the problems faced every day by his very small team in Hywel Dda and his creative plans to redesign the patients’ experience and pathways of care to cope with the volume.

The Consultant Plastic Surgeon Max Murison then gave an enthralling presentation on Laser Treatment of Scarring, illustrated with many amazing “before and after “photographs of patients who have received this innovative treatment.

Next, Jenny Hill, Chair of the Dermatology Council for Wales, gave a brief overview of the organisation and merit of the Welsh Forum and the regular meetings held, where individuals from all groups involved in dermatology meet and discuss current issues.

Lastly, Caroline Lewis – Policy Manager of the Major Welsh Conditions Team – updated the group on Welsh Government policies.

The meeting ended with Nick Ramsay summing up what we all present thought – what an amazing gathering together of expert knowledge, and a keen hope that we can go forward to make a difference to patients in Wales. The next meeting will be the AGM in January which we very much look forward to.

Get tickets now for the Dinner and Dance!

The next fund-raising event for Skin Care Cymru will be a fun night at Bridgend Tennis Club – be there or be square!!!!!

The Dance and Buffet is on Friday 23rd October with entertainment from the band Tinnitus. Tickets at £10 only are on sale for a very limited time.

Come along and support us – contact 01656 752106 for your tickets.

Running the Cardiff Half-Marathon for Skin Care Cymru!

This year we have a number of keen followers who are running the Cardiff Half-Marathon on October 4th to support Skin Care Cymru.

Marcus Davies is a Vilitilgo sufferer from Aberdare who is still running after completing the London Marathon & Swansea Half Marathon earlier this year to raise valuable funds for research in to skin disease. Marcus wants to raise awareness of his condition and hopes to send out a message that’s it’s ok to be different, it’s what’s inside that counts.

Kelly Morgan is a public health researcher at Cardiff University, specialising in multiple areas including child obesity prevention and the promotion of physical activity. She has chosen Skin Care Cymru as her charity for the Cardiff Half Marathon 2015 in memory of her Uncle, Brian Eadon, who she lost to Skin Cancer 4 years ago. She believes the work Skin Care Cymru carries out is invaluable to individuals like her uncle, heightening the awareness of skin conditions which could be preventable. Kelly says ” I’m very excited to wear the Skin Care Cymru vest amongst the thousands of runners in our city and raise funds to help make a difference.”

Lloyd Evans is our 3rd runner and this is what he had to say –

“I work as a Welsh translator for Swansea Council. I’ve run 10k several times over the past few years and more experienced runners than me have suggested I should try a half marathon. So here I am, finally attempting this distance for the first time (and quite possibly the last). I’ve chosen to raise money for Skin Care Cymru to raise awareness of this great charity and the good work it does throughout the year to prevent and treat skin related conditions and help those in Wales suffering from skin disease and skin cancer etc.

Dw i’n gweithio fel cyfieithydd Cymraeg i Gyngor Abertawe. Dw i wedi rhedeg 10k sawl gwaith dros y blynyddoedd diwethaf ac mae rhedwyr mwy profiadol na fi wedi awgrymu y dylwn i roi cynnig ar hanner marathon. Felly dyma fi, o’r diwedd yn rhoi cynnig ar y pellter yma am y tro cyntaf (ac yn ddigon posibl yr olaf). Dw i wedi dewis codi arian dros Skin Care Cymru i godi ymwybyddiaeth o’r elusen wych hon a’r gwaith da mae’n ei wneud trwy gydol y flwyddyn i atal a thrin cyflyrau sy’n ymwneud â chroen a helpu pobl yng Nghymru sy’n dioddef o glefyd y croen a chanser y croen ac ati.”

 

If you would like to support our runners, you can donate by texting: SKIN00 followed by £10 (insert how much here, eg. £1, £2, £5……etc) and send to 70070. Thank you and our runners for your support!!